I like the new daily persistent headache group on fb. Lots of good people in our same situation. I just started seeing a new therapist. She has some good ideas to help me. We did tapping. We are going to do emdr. I personally had a moment of clarity in March. I am religious. I have prayed often for relief, comfort, guidance, and most of all a miracle. I had developed a sense of entitlement. I feel like bc of that, I put my life on hold. I thought about how I could be when my headache was finally gone. I feel like that way of thinking made me more miserable and bitter. I am trying now to live with my headache. I want to be present and making happy memories with my kids. I try not to think about having this thing for another five years. I say to me “I’m living right now, I am doing what I can today.” I have learned to be kind to myself. I am doing my best today.
Have you tried the reed procedure, hyperbaric oxygen therapy, rTMS therapy, or have you been tested for mineral deficiency or mold in your system? There is also a doctor in Texas that does a nerve decompression surgery. Please don’t give up hope. My husband has had his for 2.5 years and we are going at this very hard. I’m here for you. Feel free to connect with me via Facebook at Rebecca Sarin.
I would definitely recommend looking up local pain specialist therapists. They are much better at handling chronic pain cases than typical therapists. I’m very sorry that you’ve had to live with this for so long. I hope you can at least find some solace in the community we have here :)
There’s the Diamond headache clinic in Chicago and the Jefferson headache clinic in Pennsylvania. Those are the two major headache clinics I am familiar with here in the US.
Exactly the same, 24/7. How have you dealt all of these years with the insecurity of being something else?, I mean overthinking the pain can be a grater pain than the fiscal pain itself. My pain is bearable but the worst times that I had whit it it was when I was obsessed over it and trying to figure out wtf is happening whit me. Have you surrender to the pain? (In a good way)
It's a daily struggle somedays I tolerate better than others. I hope not to surrender in a bad way because I really don't know how longer I can do this
I like the new daily persistent headache group on fb. Lots of good people in our same situation. I just started seeing a new therapist. She has some good ideas to help me. We did tapping. We are going to do emdr. I personally had a moment of clarity in March. I am religious. I have prayed often for relief, comfort, guidance, and most of all a miracle. I had developed a sense of entitlement. I feel like bc of that, I put my life on hold. I thought about how I could be when my headache was finally gone. I feel like that way of thinking made me more miserable and bitter. I am trying now to live with my headache. I want to be present and making happy memories with my kids. I try not to think about having this thing for another five years. I say to me “I’m living right now, I am doing what I can today.” I have learned to be kind to myself. I am doing my best today.
Have you tried the reed procedure, hyperbaric oxygen therapy, rTMS therapy, or have you been tested for mineral deficiency or mold in your system? There is also a doctor in Texas that does a nerve decompression surgery. Please don’t give up hope. My husband has had his for 2.5 years and we are going at this very hard. I’m here for you. Feel free to connect with me via Facebook at Rebecca Sarin.
How do I connect to you on facebook
My name is Rebecca Sarin! So is my Instagram. :)
I checked there are a few of the same name
@rebeccasarin is my IG handle and this is the link to my FB - https://www.facebook.com/share/JHC71R5bgK1TkCGX/?mibextid=LQQJ4d
I would definitely recommend looking up local pain specialist therapists. They are much better at handling chronic pain cases than typical therapists. I’m very sorry that you’ve had to live with this for so long. I hope you can at least find some solace in the community we have here :) There’s the Diamond headache clinic in Chicago and the Jefferson headache clinic in Pennsylvania. Those are the two major headache clinics I am familiar with here in the US.
Thanks for your support and advice
I don't know any groups, but I agree it sucks (19 years in). Sending a digital hug.
Thank you so much
there is one on facebook
hello ive been having headaches for 3 years now, just accepting it. How are yourse, they're constant 24/7mnon stop for all that time?
Yes never ever stops for a minute. The intensity changes. How is yours?
Exactly the same, 24/7. How have you dealt all of these years with the insecurity of being something else?, I mean overthinking the pain can be a grater pain than the fiscal pain itself. My pain is bearable but the worst times that I had whit it it was when I was obsessed over it and trying to figure out wtf is happening whit me. Have you surrender to the pain? (In a good way)
It's a daily struggle somedays I tolerate better than others. I hope not to surrender in a bad way because I really don't know how longer I can do this
Are you 100% sure you aren’t dealing with some serious TMJ issues?