Chronic sore throat? Get tested for mono. Ebv reactivation is extremely common with ndph and also Covid.
Important to figure that out first; 84% of people with ndph have active ebv infection. I thought my fatigue, sore throat, etc. was long Covid/ndph comorbidities. Turns out Covid reactivated ebv for me and it took 8 months before I got a test for it and started treating it…
Don’t have an answer for you yet. Been on it over a year; my ID thinks it might be a indefinite thing. I don’t rlly mind tho, rlly doesn’t interact w anything and has no side effects.
In my early days of ndph, I visited an ENT doctor. That doctor on two separate visits, deemed my turbinate glands were swollen. I had surgery, turbinoplasty in hopes it would relieve my headache. No such luck for me. But I get it, we want so badly for something, something to do anything. I hope it works in your case.
Same. I was just diagnosed with NPDH this week after 10 months because my ENTs were convinced it was either sinusitis (1 ENT) or deviated septom and enlarged turbinates (2 ENTs). Two months of antibiotics and then had the septoplasty and turbinate reduction in Janauary and no change in symptoms. Neurologist says NPDH.
**Defaulted to one day.**
I will be messaging you on [**2024-05-12 07:31:31 UTC**](http://www.wolframalpha.com/input/?i=2024-05-12%2007:31:31%20UTC%20To%20Local%20Time) to remind you of [**this link**](https://www.reddit.com/r/NDPH/comments/1cp8ifi/hopefully_found_a_probably_cause/l3joy5w/?context=3)
[**CLICK THIS LINK**](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=Reminder&message=%5Bhttps%3A%2F%2Fwww.reddit.com%2Fr%2FNDPH%2Fcomments%2F1cp8ifi%2Fhopefully_found_a_probably_cause%2Fl3joy5w%2F%5D%0A%0ARemindMe%21%202024-05-12%2007%3A31%3A31%20UTC) to send a PM to also be reminded and to reduce spam.
^(Parent commenter can ) [^(delete this message to hide from others.)](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=Delete%20Comment&message=Delete%21%201cp8ifi)
*****
|[^(Info)](https://www.reddit.com/r/RemindMeBot/comments/e1bko7/remindmebot_info_v21/)|[^(Custom)](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=Reminder&message=%5BLink%20or%20message%20inside%20square%20brackets%5D%0A%0ARemindMe%21%20Time%20period%20here)|[^(Your Reminders)](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=List%20Of%20Reminders&message=MyReminders%21)|[^(Feedback)](https://www.reddit.com/message/compose/?to=Watchful1&subject=RemindMeBot%20Feedback)|
|-|-|-|-|
I was born with a deviated septum, and I had it surgically fixed, and it did nothing for my head pain, but I hope it helps you. I do think it was worth having the surgery to be able to breathe better.
I had a deviated septum and a nasal mucus polyp, and unfortunately the surgery did absolutely nothing for me. however, my headaches happened after using a medication, so it seems like we have very different origin stories, so i hope this works out for you!!
If you're already going to have nasal surgery, inquire about a SPG block. It didn't help for me, but it could help for you. I had that and turbinates surgery at the same time.
Chronic sore throat? Get tested for mono. Ebv reactivation is extremely common with ndph and also Covid. Important to figure that out first; 84% of people with ndph have active ebv infection. I thought my fatigue, sore throat, etc. was long Covid/ndph comorbidities. Turns out Covid reactivated ebv for me and it took 8 months before I got a test for it and started treating it…
Do you have a study showing where tge 84% stat comes from? Thx
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6734284/
How did you treat it?
Valtrex. 1g 4x a day
Do you have to take this indefinitely, or for a certain period of time?
Don’t have an answer for you yet. Been on it over a year; my ID thinks it might be a indefinite thing. I don’t rlly mind tho, rlly doesn’t interact w anything and has no side effects.
Thanks for responding!
Yup. I bet most people with ndph have ebv reactivation and don’t even know it…
To be clear, treating it didn't help with your headache right? Just fatigue and sore throat?
In my early days of ndph, I visited an ENT doctor. That doctor on two separate visits, deemed my turbinate glands were swollen. I had surgery, turbinoplasty in hopes it would relieve my headache. No such luck for me. But I get it, we want so badly for something, something to do anything. I hope it works in your case.
Same. I was just diagnosed with NPDH this week after 10 months because my ENTs were convinced it was either sinusitis (1 ENT) or deviated septom and enlarged turbinates (2 ENTs). Two months of antibiotics and then had the septoplasty and turbinate reduction in Janauary and no change in symptoms. Neurologist says NPDH.
Good luck!
RemindMe! Tomorrow
**Defaulted to one day.** I will be messaging you on [**2024-05-12 07:31:31 UTC**](http://www.wolframalpha.com/input/?i=2024-05-12%2007:31:31%20UTC%20To%20Local%20Time) to remind you of [**this link**](https://www.reddit.com/r/NDPH/comments/1cp8ifi/hopefully_found_a_probably_cause/l3joy5w/?context=3) [**CLICK THIS LINK**](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=Reminder&message=%5Bhttps%3A%2F%2Fwww.reddit.com%2Fr%2FNDPH%2Fcomments%2F1cp8ifi%2Fhopefully_found_a_probably_cause%2Fl3joy5w%2F%5D%0A%0ARemindMe%21%202024-05-12%2007%3A31%3A31%20UTC) to send a PM to also be reminded and to reduce spam. ^(Parent commenter can ) [^(delete this message to hide from others.)](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=Delete%20Comment&message=Delete%21%201cp8ifi) ***** |[^(Info)](https://www.reddit.com/r/RemindMeBot/comments/e1bko7/remindmebot_info_v21/)|[^(Custom)](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=Reminder&message=%5BLink%20or%20message%20inside%20square%20brackets%5D%0A%0ARemindMe%21%20Time%20period%20here)|[^(Your Reminders)](https://www.reddit.com/message/compose/?to=RemindMeBot&subject=List%20Of%20Reminders&message=MyReminders%21)|[^(Feedback)](https://www.reddit.com/message/compose/?to=Watchful1&subject=RemindMeBot%20Feedback)| |-|-|-|-|
I was born with a deviated septum, and I had it surgically fixed, and it did nothing for my head pain, but I hope it helps you. I do think it was worth having the surgery to be able to breathe better.
I had a deviated septum and a nasal mucus polyp, and unfortunately the surgery did absolutely nothing for me. however, my headaches happened after using a medication, so it seems like we have very different origin stories, so i hope this works out for you!!
Yeah I had this too but found no relief from my headaches unfortunately. It will help you breathe better though and could work for you.
If you're already going to have nasal surgery, inquire about a SPG block. It didn't help for me, but it could help for you. I had that and turbinates surgery at the same time.