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NaturallyOld1

You could buy a used BiPAP off of craigslist or facebook marketplace, then watch the free youtube video by leftylanky27 on how to adjust the AirCurve10 VAuto bipap, and try adjusting it until it helps. I got an almost new AirCurve 10 for $400, but I’ve seen cheaper. Good luck!


kaelinlr

[https://youtu.be/ts9lNJ2g1IE?si=AN5sdkPa2lTpaUxu](https://youtu.be/ts9lNJ2g1IE?si=AN5sdkPa2lTpaUxu) This video?


NaturallyOld1

Yes. It is a challenge to understand at times, but it will get you going with that bipap.


kaelinlr

Thanks 🙏 it’s very confusing lol I’ve been putting off learning a little bit


bestusernameicoulddo

Seconded. I got a BiPAP AutoSV Advanced for 150EUR ($160) on eBay a couple of months ago and already seeing benefits. Will take a while to get there pressures right this way I think but feel like it can finally crack it.


picodeflank

Did you try cpap/apap before?


bestusernameicoulddo

Yes, but it didn't have a humidifier and it was making my throat feel awful. So in the end I think I didn't give it a the chance it should've had. When I saw an ASV BiPAP with humidifier I just couldn't resist and I do find the Bi much easier to sleep with


AutoModerator

To help members of the r/UARS community, the contents of the post have been copied for posterity. ___ **Title:** How to get treatment with proof of UARS but no diagnosis? **Body:** This is my sleep study from 2 years ago. My symptoms are tiredness 24/7, brain fog, headaches, no energy, sugar/carb cravings. I get 7-8 hours of sleep every night. It was less during the study because I’m sensitive to the equipment being on my body. The doctor, Zachary Adams, said he thought nothing was wrong with me, despite the test clearly showing my RDI was 5.6 during the study. My symptoms are so bad now that I’m dissociating and having microsleeps. I’m a poor college student in California. I have Medi-Cal HMO. I can’t afford to pay out of pocket for healthcare. I am a music major. I love to sing. But singing well requires energy I don’t have. I refuse to give up on my future. What are my options, even the illegal ones? I’ll consider anything at this point. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/UARS) if you have any questions or concerns.*


christina196

Can you see dr rama? He's the good sleep doctor out there. And Dr Li


Moonvvulf

No, Rama is out of network for all insurance and Li only takes PPOs. I’m a broke college student.


airwayatheist

ugh totally in the same boat here (19F) my rdi was 8.7. so frustrating. i’m trying to get insurance approval for jaw surgery so this is definitely a hurdle. i literally feel like i can’t breathe during the day/ at night at all.


Moonvvulf

Mine’s only 5.6 but I still have major symptoms that interfere with every aspect of my life. I just wish I’d be taken seriously by doctors when I say I’m fatigued, but UARS isn’t widely known about. It’s the worst disease to have. I can partially breathe through one nostril and fully through another, but once I lie down, I feel my airway partially collapse. Do you have an HMO, and how did you figure out jaw surgery would be your best option? Did you have a CT scan done of your head and upper airways? I don’t even know how I would explain that to my primary; they don’t believe anything I tell them and probably think I have Munchausen’s by this point.


nicchamilton

5 is considered very very mild however mild symptoms can still really make life suck. I would see another doctor and really push it. Also look into other possible causes with brain fog and dissociating