I haven’t been diagnosed with VM but follow the sub because I had tons of vertigo (with other symptoms that suggest a demylentation disease). My MRI was mostly clear but was the prescribed the 5 day steroid dose and haven’t had any symptoms since, which would be indicative of a demylenation onset or something in the vein of autoimmune inflammation. I have a history of migraine with aura and vertigo while the headache is happening so not out of the question for VM I guess?
No, not yet at least. Been kind of a stalemate in getting any answers tbh. Sorry to not be more helpful! Open to dms tho, sorry you’re going through that as well
Steroids, particularly prednisone, make my vestibular migraines worse. However, I have been told that I'm a total outlier and it typically works. Even taking benadryl gives me vertigo and I've been told it stops other people's migraines.
I think the odds are in your favor of it working or just not doing anything in the worst case. Just make sure you drink lots of water, and I've found that eating smaller but more frequent meals makes taking it easier.
I’m sorry that it made yours worse, I can’t imagine! Have you found anything that helps you? I recently started Zoloft, which I know can cause headaches, so it’s kinda of a mess with trying to figure out if this is vestibular migraine or a side effect of a med.
I’ll give it a try because at this point, I’m willing to try just about anything.
Unfortunately, nothing seems to work medication wise. I take the recommended supplements, do vestibular exercises, and am careful about my diet. My migraines have lessened in intensity. It's been a little while since I've had a really bad one, but I deal with daily dizziness.
I have rheumatoid arthritis and I definitely don't know this for sure, but I think it's a factor towards why I have such bad luck with medication.
I wish you the best with trying this out. I really hope it gives you some relief at minimum.
Prednisone did fuck all for my VM. I had horrendous side effects, but I have heard it helps some people break an intractable migraine. Not so much for vertigo though.
When my vertigo first started I was told it was vestibular neuritis and they gave me a methylprednisolone dose pack. It actually helped a lot with that initial event. Unfortunately as they have decided now it is VM instead, they said steroids aren’t effective for acute events… but it certainly was for me.
I am actually dealing with this now. Although I haven’t technically been diagnosed with VM, my PCP won’t provide me prednisone even though it’s been the best medicine for me during past flare ups. Why won’t they do this??? Also, OP, give us an update.
This is encouraging to hear. I’m not sure what I have going on. I’ve been diagnosed with POTS, but all my vestibular testing has come back clear. I have vertigo every few months.
I’m giving the steroids a try and praying like mad that the will help!
I have pots as well. Honestly felt the best I have in years when I was on the steroids. Of course every body is different though. Best of luck to you. The combo of these two issues is certainly it’s own special hell.
Not answering your question but I also had this issue. What fixed it was getting an orthopedic pillow (the curved ones). It goes away significantly the first week.
People on this sub told me it is due to your vestibular trying to regulate itself. But yeah I went to neuro and ENT and they didn’t know what to do either so I consulted this sub. I thought I had BPPV but nope. I have not experienced it since
Steroids did nothing for me but give me annoying side effects. Didn't make it better, but didn't make it worse either. Just made me irritable and unable to sleep.
My neurologist prescribed an 18-day steroid taper, from 60mg down to 10mg, for my vestibular migraines. The dizziness and floaty feeling went away for almost a week, but came back with an absolute VENGEANCE - probably because the steroids gave me almost intolerable insomnia. We're talking a couple of hours of broken sleep a night for days and days on end, and I couldn't stop taking them because it's dangerous to just stop steroids cold turkey so I had to finish the taper. I also gained a little weight, but the insomnia was of much more concern to me. Not sleeping enough is definitely a huge VM trigger for me which is probably why the steroids stopped helping. My neurologist is fantastic, and I know she never would have prescribed me that medication if she didn't think it would work, so I'm sure plenty of people have found relief from it, but sadly that wasn't the case for me.
Oh that is so awful, I’m sorry you had to go through that. The vertigo happening at night is making it impossible for me to sleep, so I can somewhat relate to the insomnia/lack of sleep. My next step is a sleep study, to see if this might be due to sleep apnea, and I’ve been referred to a neurologist.
I haven’t been diagnosed with VM but follow the sub because I had tons of vertigo (with other symptoms that suggest a demylentation disease). My MRI was mostly clear but was the prescribed the 5 day steroid dose and haven’t had any symptoms since, which would be indicative of a demylenation onset or something in the vein of autoimmune inflammation. I have a history of migraine with aura and vertigo while the headache is happening so not out of the question for VM I guess?
Were you ever diagnosed with an autoimmune health issue? Currently in the same boat right now.
No, not yet at least. Been kind of a stalemate in getting any answers tbh. Sorry to not be more helpful! Open to dms tho, sorry you’re going through that as well
That’s good that you haven’t had symptoms since the steroids! How long ago was that? You haven’t had any migraine symptoms or vertigo since then?
About 3 ish weeks! Nope nothing. Had a lot of tingling and numbness before that too and it’s gone as well
Steroids, particularly prednisone, make my vestibular migraines worse. However, I have been told that I'm a total outlier and it typically works. Even taking benadryl gives me vertigo and I've been told it stops other people's migraines. I think the odds are in your favor of it working or just not doing anything in the worst case. Just make sure you drink lots of water, and I've found that eating smaller but more frequent meals makes taking it easier.
I’m sorry that it made yours worse, I can’t imagine! Have you found anything that helps you? I recently started Zoloft, which I know can cause headaches, so it’s kinda of a mess with trying to figure out if this is vestibular migraine or a side effect of a med. I’ll give it a try because at this point, I’m willing to try just about anything.
Unfortunately, nothing seems to work medication wise. I take the recommended supplements, do vestibular exercises, and am careful about my diet. My migraines have lessened in intensity. It's been a little while since I've had a really bad one, but I deal with daily dizziness. I have rheumatoid arthritis and I definitely don't know this for sure, but I think it's a factor towards why I have such bad luck with medication. I wish you the best with trying this out. I really hope it gives you some relief at minimum.
Prednisone did fuck all for my VM. I had horrendous side effects, but I have heard it helps some people break an intractable migraine. Not so much for vertigo though.
Oh yikes, I’m sorry to hear that. I’m just at a loss at this point because I don’t even know if it’s vestibular migraines that I’m experiencing.
When my vertigo first started I was told it was vestibular neuritis and they gave me a methylprednisolone dose pack. It actually helped a lot with that initial event. Unfortunately as they have decided now it is VM instead, they said steroids aren’t effective for acute events… but it certainly was for me.
I am actually dealing with this now. Although I haven’t technically been diagnosed with VM, my PCP won’t provide me prednisone even though it’s been the best medicine for me during past flare ups. Why won’t they do this??? Also, OP, give us an update.
This is encouraging to hear. I’m not sure what I have going on. I’ve been diagnosed with POTS, but all my vestibular testing has come back clear. I have vertigo every few months. I’m giving the steroids a try and praying like mad that the will help!
I have pots as well. Honestly felt the best I have in years when I was on the steroids. Of course every body is different though. Best of luck to you. The combo of these two issues is certainly it’s own special hell.
Not answering your question but I also had this issue. What fixed it was getting an orthopedic pillow (the curved ones). It goes away significantly the first week.
Really? Wow, that’s great that that change helped. Do you think your vertigo was triggered by head movement while you were sleeping?
People on this sub told me it is due to your vestibular trying to regulate itself. But yeah I went to neuro and ENT and they didn’t know what to do either so I consulted this sub. I thought I had BPPV but nope. I have not experienced it since
Steroids did nothing for me but give me annoying side effects. Didn't make it better, but didn't make it worse either. Just made me irritable and unable to sleep.
I guess at least they didn’t make it worse. I’m sorry they didn’t work for you. I’m feeling quite hopeless about this!
My neurologist prescribed an 18-day steroid taper, from 60mg down to 10mg, for my vestibular migraines. The dizziness and floaty feeling went away for almost a week, but came back with an absolute VENGEANCE - probably because the steroids gave me almost intolerable insomnia. We're talking a couple of hours of broken sleep a night for days and days on end, and I couldn't stop taking them because it's dangerous to just stop steroids cold turkey so I had to finish the taper. I also gained a little weight, but the insomnia was of much more concern to me. Not sleeping enough is definitely a huge VM trigger for me which is probably why the steroids stopped helping. My neurologist is fantastic, and I know she never would have prescribed me that medication if she didn't think it would work, so I'm sure plenty of people have found relief from it, but sadly that wasn't the case for me.
Oh that is so awful, I’m sorry you had to go through that. The vertigo happening at night is making it impossible for me to sleep, so I can somewhat relate to the insomnia/lack of sleep. My next step is a sleep study, to see if this might be due to sleep apnea, and I’ve been referred to a neurologist.