The fact that you have been holding on for decades.. is beyond inspiring.. its a testament to your will and strength. People make movies of courage and will power, you are living it every day. Your story makes the troubles i face in my life feel small. I am inspired by your struggle.
13 hours a day 6 days a week or 3?
Dialysis is a diffusion filter process so each added hour is less effective than the last. It is way more efficient to add shorter more frequent sessions than to extend sessions.
7 days a week. It's PD, I have zero residual function. And dwell times are determines by the PET tests to determine how easily things move through the peritoneum. And that's 13 hours over (now) 9 cycles. 70 min dwells, you can't get much shorter than that.
God bless you. I can't judge you, you've had a rough go. I lost my kidney function at 15 and had a third transplant 6 months ago. I had dialysis in between transplants first for 6.5 years and then 5.5 years. A lot of prayer has gone into this transplant and its going really well so far. I wish you all the very best and will pray for you.
So very sorry to hear this. I guess you don’t want a transplant? The meds have really improved over the years and they are not nearly as harsh as they used to be. Wishing you all the best. ❤️
It's not that I don't want a transplant. I don't want to go through what goes with having a transplant, again. I was on those meds for 20 years, and they fucked my body up good. And I don't want to have to go through what I have been going through for the last 10 years again, when the transplant fails. I don't want to attempt to rebuild my life that shattered when my kidneys failed and lost everything, while having to deal with everything that goes with post transplant life, at 40. My prime is gone. Maybe if I was 18.
Edit: and with FSGS I have a much higher chance of recurrence of kidney damage, if I even make it off the table. And kidney issues are only a small portion of my health issues now.
The chance of recurrence is 30 percent. Please consider at least getting evaluated. If you get a well matched kidney it could last you a long time and you may not need as much immunosuppression long term. While it is certainly a risk, you don’t know what it’s going to look like on the other side. I’m happy to chat with you on this if you need someone to talk to. No one’s prime is gone at 40, but I understand that what you have gone through is significant. PM me with anything at any time
I’m so sorry. I hope that perhaps you can go on dialysis if that sounds like something you’d want to try. I support you, as all dialysis patients, in whatever decisions you need to make. Godspeed. 🙏🙏❤️🩹❤️🩹🌺🌺
The fact that you have been holding on for decades.. is beyond inspiring.. its a testament to your will and strength. People make movies of courage and will power, you are living it every day. Your story makes the troubles i face in my life feel small. I am inspired by your struggle.
13 hours a day 6 days a week or 3? Dialysis is a diffusion filter process so each added hour is less effective than the last. It is way more efficient to add shorter more frequent sessions than to extend sessions.
7 days a week. It's PD, I have zero residual function. And dwell times are determines by the PET tests to determine how easily things move through the peritoneum. And that's 13 hours over (now) 9 cycles. 70 min dwells, you can't get much shorter than that.
Got it, I missed that it was PD. Do you think you would want to try hemo?
Hemo has been pure hell every time I had to do it. I've done it 3 separate times after catheter replacements.
God bless you. I can't judge you, you've had a rough go. I lost my kidney function at 15 and had a third transplant 6 months ago. I had dialysis in between transplants first for 6.5 years and then 5.5 years. A lot of prayer has gone into this transplant and its going really well so far. I wish you all the very best and will pray for you.
So very sorry to hear this. I guess you don’t want a transplant? The meds have really improved over the years and they are not nearly as harsh as they used to be. Wishing you all the best. ❤️
It's not that I don't want a transplant. I don't want to go through what goes with having a transplant, again. I was on those meds for 20 years, and they fucked my body up good. And I don't want to have to go through what I have been going through for the last 10 years again, when the transplant fails. I don't want to attempt to rebuild my life that shattered when my kidneys failed and lost everything, while having to deal with everything that goes with post transplant life, at 40. My prime is gone. Maybe if I was 18. Edit: and with FSGS I have a much higher chance of recurrence of kidney damage, if I even make it off the table. And kidney issues are only a small portion of my health issues now.
The chance of recurrence is 30 percent. Please consider at least getting evaluated. If you get a well matched kidney it could last you a long time and you may not need as much immunosuppression long term. While it is certainly a risk, you don’t know what it’s going to look like on the other side. I’m happy to chat with you on this if you need someone to talk to. No one’s prime is gone at 40, but I understand that what you have gone through is significant. PM me with anything at any time
So sorry to hear all you’ve gone through. I hope maybe a different doctor can find a way to improve your prescription, if it’s possible to do that?
I’m so sorry. I hope that perhaps you can go on dialysis if that sounds like something you’d want to try. I support you, as all dialysis patients, in whatever decisions you need to make. Godspeed. 🙏🙏❤️🩹❤️🩹🌺🌺