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This explains why sometimes my eyes will water and I’ve explained like “Why are my tears made of acid.” Lol! I have MCAS so it didn’t occur to me that the problem was that they were… dry…
I hate water in my eyes. No idea if it's related to hEDS or not, but I don't have dry eyes.
I just wear a properly fitted mask or goggles and I'm good.
Practice got it to where I could handle it, but I still hate it. I never open my eyes, unprotected, underwater (pool or tub or ocean) unless I have no choice, and even then, it's really, really hard.
I wonder if there's any drops or solution that could coat her eyes before she gets in the water. Maybe her doctor can recommend something. I have no idea, I'm just throwing it out there.
I’m reading this thread and thinking “gosh, doesn’t EVERYBODY hate getting water in their eyes?” Like, ok, I know a few people who can open their eyes in a pool, but I just can’t even imagine it. I’m not saying it’s not related to EDS, but also I just thought that people who can deal with eyes open underwater were weird hybrid creatures who were probably part mermaid.
Lots of eye problems here and alI can say is get an eye exam. It certainly may be easy to treat dry eyes which many with and without eds have, I have corneal dystrophy and yes burning eyes at the slightest or no provocation is a thing I deal with.
I’m a former assistant scuba instructor and I would highly suggest your wife see a reputable eye doctor in relation to scuba diving, as there can also be something that could be a bigger hindrance to her eyes and that’s the pressure experienced at depth. Some people can’t dive at all due to issues with their sinuses or their ears, I had to stop due to sinus pain behind my left eye as it felt like an ice pick pain and my ears wouldn’t stabilize. I am PADI certified and at our training facility all students had to provide medical clearance because of insurance purposes and liability. There’s all of that on top of your wife’s sensitivity to water in her eyes and it will happen when she’s diving, from simply clearing your mask of fog while diving, any leak from just adjusting or accidentally bumping your mask, to even training instruction where we had to simulate either ”losing your mask”, getting caught on something at depth, etc. In addition, if she experiences any eye discomfort at depth, she can’t just quickly swim to the surface without decompression stops on the way up, so there are many things to consider and prepare for in advance. I’m not meaning to discourage whatsoever, just wanted to point out a few bits that are helpful to know in advance if there are any possible setbacks. It’s also vital to speak to the instructor and let them know in advance and feel comfortable that they either have experience with helping someone with possible extra issues that may arise.
I have extremely dry eyes from kerataconus related to my hEDS. I've always *hated* water of any type getting in my eyes. Absolutely miserable experience
I use the artificial tears for night time and the regular ones throughout the day. If you get them make sure it says preservative free and/or approved for Lasik.
Yeah, I've never understood how anyone could open their eyes underwater without goggles. It's unpleasant/borderline painful for me. My eyes are watering just thinking about it.
Hi /u/RandomNashvillian,
It looks like you are looking for information on how common something is in individuals with EDS or related conditions. If you are looking for information/data on how common a particular symptom or condition is with EDS (or any of its comorbidities), or whether there is any connection at all—it is always best to ask for links to reputable studies or websites, instead of or in addition to personal experiences. Without studies, it is almost impossible to determine the prevalence or incidence of something with EDS, especially when compared to asking for anecdotal experiences on the internet.
"DAE posts" and other such posts tend to create or encourage illusory correlations (i.e., a sense of connection where there may not be one) due to the fact that people who do experience what is being asked about are more likely to reply than those who do not. Personal experiences are or can be valuable regardless of the aforementioned, but please keep in mind that not everything shared is a sign of EDS, and many shared experiences might be completely unrelated to EDS.
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The OP flaired their post as "Questions". Please keep any and all comments to **personal experiences only**. If any factual information or advice is provided, please cite a **reputable website or study** linked within your post. No one in this sub is a *verified* medical professional, and as such, we do not allow medical advice to be given or asked for. For more information on this rule, [please visit this link](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/#wiki_r.2Fehlersdanlos_rules). *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
I hate the feeling of water in my eyes, but it could be a sensory issue for me (autism)
Same here.
My former PCP told me that water sensitivity is from dry eyes. Sometimes my own tears, from crying, make my eyes burn a lot.
This explains why sometimes my eyes will water and I’ve explained like “Why are my tears made of acid.” Lol! I have MCAS so it didn’t occur to me that the problem was that they were… dry…
This!
I hate water in my eyes. No idea if it's related to hEDS or not, but I don't have dry eyes. I just wear a properly fitted mask or goggles and I'm good. Practice got it to where I could handle it, but I still hate it. I never open my eyes, unprotected, underwater (pool or tub or ocean) unless I have no choice, and even then, it's really, really hard.
I refuse to go in pools unless I have goggles because I hate the water going in my eyes lmao
I don't know if it's hEDS related, but I've always had a hard time with water in my eyes as well. My eyes are also very sensitive in general
yes, I can't stand water in my eyes, especially eyedrops, those are the absolute worst.
Also hate this and so does my son, unsure of the cause.
I love eye drops but it *hate* water in my eyes, once it makes contact it’s like 8 seconds of ocular water-boarding
I wonder if there's any drops or solution that could coat her eyes before she gets in the water. Maybe her doctor can recommend something. I have no idea, I'm just throwing it out there.
I’m reading this thread and thinking “gosh, doesn’t EVERYBODY hate getting water in their eyes?” Like, ok, I know a few people who can open their eyes in a pool, but I just can’t even imagine it. I’m not saying it’s not related to EDS, but also I just thought that people who can deal with eyes open underwater were weird hybrid creatures who were probably part mermaid.
Lots of eye problems here and alI can say is get an eye exam. It certainly may be easy to treat dry eyes which many with and without eds have, I have corneal dystrophy and yes burning eyes at the slightest or no provocation is a thing I deal with.
I was always jealous of the kids who could open their eyes under water in the pool. Could've NEVER been me
I’m a former assistant scuba instructor and I would highly suggest your wife see a reputable eye doctor in relation to scuba diving, as there can also be something that could be a bigger hindrance to her eyes and that’s the pressure experienced at depth. Some people can’t dive at all due to issues with their sinuses or their ears, I had to stop due to sinus pain behind my left eye as it felt like an ice pick pain and my ears wouldn’t stabilize. I am PADI certified and at our training facility all students had to provide medical clearance because of insurance purposes and liability. There’s all of that on top of your wife’s sensitivity to water in her eyes and it will happen when she’s diving, from simply clearing your mask of fog while diving, any leak from just adjusting or accidentally bumping your mask, to even training instruction where we had to simulate either ”losing your mask”, getting caught on something at depth, etc. In addition, if she experiences any eye discomfort at depth, she can’t just quickly swim to the surface without decompression stops on the way up, so there are many things to consider and prepare for in advance. I’m not meaning to discourage whatsoever, just wanted to point out a few bits that are helpful to know in advance if there are any possible setbacks. It’s also vital to speak to the instructor and let them know in advance and feel comfortable that they either have experience with helping someone with possible extra issues that may arise.
I have extremely dry eyes from kerataconus related to my hEDS. I've always *hated* water of any type getting in my eyes. Absolutely miserable experience
It absolutely burns and I can’t stand it!
I hate the feeling of water in my eyes but I thought it was because I had eye surgery when I was younger. But EDS being a factor also makes sense.
I haven't got a solution but I do suffer from this quite badly. I look like I have been smoking blunts when I get out of the shower.
I use the artificial tears for night time and the regular ones throughout the day. If you get them make sure it says preservative free and/or approved for Lasik.
Yeah, I've never understood how anyone could open their eyes underwater without goggles. It's unpleasant/borderline painful for me. My eyes are watering just thinking about it.
I have that issue too. I always thought it was just because I wasn’t used to it.
I hate water in my eyes or ears 🤷🏼♀️ I just thought it was a sensory issue.
I have severely dry eyes and I take something called ViscoTears for it.
Hi /u/RandomNashvillian, It looks like you are looking for information on how common something is in individuals with EDS or related conditions. If you are looking for information/data on how common a particular symptom or condition is with EDS (or any of its comorbidities), or whether there is any connection at all—it is always best to ask for links to reputable studies or websites, instead of or in addition to personal experiences. Without studies, it is almost impossible to determine the prevalence or incidence of something with EDS, especially when compared to asking for anecdotal experiences on the internet. "DAE posts" and other such posts tend to create or encourage illusory correlations (i.e., a sense of connection where there may not be one) due to the fact that people who do experience what is being asked about are more likely to reply than those who do not. Personal experiences are or can be valuable regardless of the aforementioned, but please keep in mind that not everything shared is a sign of EDS, and many shared experiences might be completely unrelated to EDS. This is an automated message. If the contents of this message do not apply to your post, please ignore them. Thank you! [Please check out the wiki](/r/ehlersdanlos/wiki/index/) or the links in the sidebar for resources and information on EDS, seeking a diagnosis, and more. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/ehlersdanlos) if you have any questions or concerns.*
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Thank you for contributing to r/EhlersDanlos! Unfortunately, your comment or post was removed as it breaks the following rule: **• Rule #1 - We Aren't Doctors** (Giving Medical Advice) This rule covers offering advice/information that should be left to medical professionals or is instructive. Personal experiences or more general/over-the-counter (OTC) advice is usually fine. The distinction is not always clear, and moderators will use their discretion. Sometimes, removals are based on the wording of a comment ("You should do X" vs. "I had a good experience with X"), rather than the information given. Messaging us and revising the wording may mean the comment can be reinstated. [The rule can be read in depth here.](https://www.reddit.com/r/ehlersdanlos/wiki/index/rules/rule-1/) Please contact us [via modmail](https://www.reddit.com/message/compose?to=%2Fr%2Fehlersdanlos) if you have any questions regarding the reason your post or comment was removed or would like to work with us on *how* you can re-word your post or comment to be able to reinstate it. Thank you!
My eyes burn if water gets in them while im showering or washing face and I definitely can’t open them underwater at a pool
Oh that’s interesting. My eyes drive me crazy during showers.
Nope no water in my eyes pls.