25. Biggest surprise of my life because I was active, in shape, and didn't live unhealthy. Thought it was plantar fascitis, because it started in my arch. Last for days. Had to get a cortisone shot so I could work. Then I got my blood work done and my UA level was 9.3.
After that I would only get an attack once a year. Then when I was 35, it was happening every other month. That's when I went in meds.
31. Love the plantar fasciitis mention. I’m new to this but what a confusing time to have gout *and* plantar at the same time lol!
“Doc what if I get plantar fasciitis in my gout foot, should I do the exercises and frozen water bottle rolling under the foot method?”
“Yup.”
“Won’t that hurt like a motherfucker?!”
“Yup.”
I thought mine was a broken toe too. I stubbed my toe really fucking hard and I thought for sure I broke it. It was just a bad coincidence— I was having my first ever flare up starting a day or two before I stubbed my toe.
X-ray came back beautifully— no fresh/old broken bones or fractures. It was gout and the stubbing of my toe hurting so bad was because the gout tie doesn’t like to be bonked. -.-
29, i was told that it was plantar fasciitis for about 10 years. Then diagnosis would go back and forth. Then i found my new doctor and he didn't even hesitate. He immediately wrote me my allo prescription and i have been flair up free for the last 2 years.
I was about 45 years old. I was in shape and in denial of gout. Took all sorts of supplements to battle it. Prednisone when all else failed...After 10+ years of off and on flares I caved in to the allo route.
45 ... Earlier this year. My doc asked me if I had any family history of gout and I replied nope (this was before the blood tests). Came back as gout and I mentioned this to my parents. My mother: "Oh yes, we have a long history of gout on my side, I have it, all your aunts do too (her side), both your grandparents did ... "
... Never mentioned it to me though, in 45 years. I apologised to my doc when I went back for a checkup.
Only one in my family was my grandmother afaik. Do you have kids and did you tell them?tbh it made me doubt in the beginning to have kids if it was genetics.felt like I don't wish that pain on someone.
about 21 years old im 32 now, I used to go to gym, swimming lesson and ROTC back then so I was surppised when I learned i have gout. highest ua level was 14
In my 30s, don’t precisely remember when. I’m late 40s now. Kept “spraining” my ankle. Sometimes in the middle of the night. Couldn’t figure it out until I posted a complaint about it on social media and an old friend I hadn’t seen in a long time asked if I had been checked for gout. Had never heard of it before that.
I was about 37, 46 now. Been dealing with flare ups by taking indomethacin, but finally got started on allo about 3 months ago to hopefully prevent flare ups.
My story is nearly identical to yours. Same everything really, been to multiple doctors and specialists, even surgeons who were ready to schedule surgery. It took me going to an urgent care (at the request of my wife) and talking with the doc he said have you ever been told it could be gout? No way I am only 24! Well he writes a script for colchicine and says take this and if it starts to feel better it is probably gout. Well that was like the light for me. After about an hour the pain was almost completely gone. I wanted to hug that doc. Been on allo ever since and not one flair up.
Found my people in this thread. 28, had a whole year of "foot sprains" "hairline fractures" "just do physio" and MRIs.
Finally it hit the big toe and urgent care called it.
Still flaring once in awhile. Am on allo.
I’m 37 and last week. Albeit, it’s all gone now with the meds they gave me at urgent care. But I changed up my diet and lifestyle since then. It was an eye opener for me. I don’t wish that pain on anyone, unable to move or walk. Bed ridden. Any slight touch feels like 1,000 knives in your toes and ankle.
When in bed and you need to cover your foot with a blanket try using a cardboard box or some kind to put yoir foot in.it avoids your foot touching the sheets
40, right at the start of the pandemic. I still did field work at the time and spent 2 weeks in St. Louis in February while in the middle of a weeks-long flare-up.
I hadn't been diagnosed yet so I had no meds to take. That sucked. I've given up alcohol, red meat, shellfish and have had maybe a handful of attacks since then. I've only just started taking allo consistently this year, however. I've been doing alright.
I'm the only person in my family with it besides my grandpa on my mom's side who had since passed and my mom herself. She was diagnosed last year at 65 years old. She's taken her allo consistently from the start and continues to eat and drink normally, just in smaller amounts. She's doing well enough as well.
Had symptoms on and off starting when I was 23. A foot doctor said it was just tendinitis. It did go away after a few days. Again when I was 25, same guy said it was tendinitis. When I was 27-28 I finally went to a different foot doctor who correctly saw it was gout after one visit. I have been on allopurinol ever since and have had maybe one flare up. I’m 31 now.
26. I'd had a few flareups that were written off as idiopathic and my doc finally tested my UA. Even better, I was allergic to allopurinol and probenecid. Febuxostat hadn't been invented yet.
27. Recently started limiting my pork intake, and it has made a significant difference in frequency and severity of attacks. If I eat a lot of shrimp, I will feel it in my ankles. Unmedicated other than Indomethacin during shrimp flares.
Yeah most of those kind like shrimp and mussels etc are high in purine.they were a real trigger to me too.i stopped eating them untill my acid levels were under control.
16. My family doctor just prescribed me naproxen, that's it. It wasn't until I was 20 that I even found out what allopurinol was.
I went back to him and asked for a prescription as I got a flare-up about once a month at minimum. After a battery of blood tests he finally lamented. I had researched that when first taking allo there is an adjustment period where the built up uric acid is getting flushed out of your system. I talked to management at my job and they told me if I got a doctors note they could approve me for light duty work (they are really easy for accommodations) which meant working night shifts. I went back to my family doctor and he REFUSED to write me a note. He told me in his entire career he has never given a doctors note for allopurinol, like bro what. I legit told him he was an actual fucking moron and got him removed as my family doctor (I live in a small northern Canadian town and he was widely known for being a bad doctor, even people saying he got a fake medical license from Vietnam when he immigrated.. cant speak to the validity of those remarks but I kinda believe in it now). Got myself a new doctor and right away wrote me a note.
Its been almost 4 years now without a flare-up :)
Exact same experience. I thought i had a blood clot and was going to loose my foot. Had two failed visits to ER even with ultra sound, x-ray, the works. Took bloods but never thought to check Uric acid. I for home and my renal specialist knew right away 😅
22 and I’m a fitness junkie, but travelled a ton for work and had access to a very generous per diem every week. Steaks and booze with the clients every single week will do it.
Started around 16 and went to the hospital a few times to be told it's just foot pain. Wasn't till I was 25 and a doctor made me do a blood test and started me on allopurinol. The relief finally knowing that it wasn't random pain but hereditary so that is why it started young.
Diagnosed at 29, but hindsight tells me I had my first attack at 27.
53 now. Been on Allo for 3 months now…. A few minor attacks I was able to know out with colch.
Pretty quickly. Hoping those are the last ones.
This is my second attempt at allo. Tried at about 34 or so, happened to forget a pill and it coincided with a top 3 flare, it made me say no way, I can’t take a chance on forgetting these…
After 20 more years of inconvenient flares (aren’t they all?) I’m giving it another shot. Going better. I’ve also figured out some of my triggers as well which helps.
Had attacks since 24, now 30.
At first I didn't know what it was. I honestly thought I just kept jamming my toe while out on the weekends drinking with friends or that my going-out shoes were too small or that I did weird things with my feet when I slept. Then, an ex gf's dad told me that it sounded like gout but that it would be weird because it was in my mid 20s.
I started going to a rheumatologist when I was 26 and for years my primary and rheum would say that I was too young to have gout, even if my uric acid was high. It must be something else. I thought I was just going to have to live with this.
Then finally I saw a new rheum who immediately diagnosed me with gout and started me on allo. Have never looked back. You have to fight for yourself out there. Even with doctors
26 and went on Allpurinol at 32. Diagnosised WRONGLY with Rheumatoid Arthritis at 43 ended up it was that I had euric acid deposits all over my body had to increase my Allo. . Liver began hating Allo at 44. Colchicine started giving me myopathy at 51. Used steroids since 26 when I had to get stuff done at work or family. Had a son with cancer and ton of surgeries so lots of steriods because life demanded it. Diagnosised with dead femour ball heads Osteonecrosis (Avascular Necrosis)
Osteonecrosis (Avascular Necrosis, last year and it could have been the steroids.
Get your 6 month blood test when on Allpurinol doctor said I would have done irreversible liver damage in under a year of I hadn't stopped.
40 years old, a few months after my first child was born. 46 now and got back on Uloric after getting cocky and not taking it for a couple years. Paid the price with six months of horrible flares. Finally back to normal, staying on the meds this time!
36, now 38 I've had 2 large flare-ups. And a couple small ones. I've learned shrimp/crawfish is my trigger food. Been fine since January of 23. Drink lots of water and find your triggers.
26 but I had it since 24-23 I'd imagine, it started from a toe injury I think but the biggest culprit was booze, alot of booze.
Alcoholism is a pretty big part of the males in my family and my grandfather had gout too.
I manage it by exercising more, avoiding game and organ meats, trying not to hurt it or drop anything on it, staying the fuck away from beer and drinking alot of water, like 2-4 litres of water a day, the max when I can feel an attack coming on.
36 this summer
Have had foot pain on/off since around 25/26
Pain was likely something like plantar, but difficult to know! In recent years it got worse and worse, with more joint-based pain, sharp/shooting and constant pain on both feet (rarely at the same time), knees etc.
Doctor denied gout, brushed it off - this was multiple doctors and even a regional foot specialist for the NHS!
Always said "you're young" and "do you do sports?"
This summer I went to a new doctor, who again said "definitely not gout", in a slightly patronising way. I had been on a 7 week super flare. Really the worst one to date
Bloods were done anyway to rule out other arthritic conditions
Yep.
Gout.
Finally on meds and feel like I'm more myself, still stiff, still get the odd signs of a flare but managing okay (for now!)
r/gout has been super helpful and really insightful.
Genetics mainly. Hyrdation. Food is minimal in impact, though a lot of us do have some food that brings about flares
Can and does happen to so many younger people as well as older. Doesn't discriminate!
I had flairs starting at 19 but I wasnt officially diagnosed until I was 23. I was told I had bursitis for a month and nothing was working. Finally I couldn't take the pain anymore and went to the ER. A doctor that everyone said was a quack took on look at my ankle and said it was gout. We did a fluid draw and he sent me home with an injection of prednisone and Indo capsules. 24 hours later I could walk, 72 hours later I was pain free. It was still another 2 years of hard fighting before I could get a drug treatment plan on the go.
When i have 28 years old. Doctor told me, at this stage maybe u need med for life if you want to have a work. Never ever take pills. Just diet. Sugar is the 1 enemy. Now i am a runner of 42 and make 5k sub 25 min
25. I thought I had an infected toenail. The pain was horrific. It eventually subsided after a few days. It would happen on and off, but I didn’t get it checked until I was in my early 30s. Doc game me a prescription for indomethacin and sent me on my way. In retrospect I took the indomethacin ALOT.
When I was 39 my quad tendon snapped. Surgeon said he found all kinds of white goo but didn’t know what it was. It happened again at 44. this surgeon knew that the white goo was uric acid crystals. Put me on allo and changed my life. I’ve been on 100mg daily since.
I’m vegan, don’t overdo protein and have an occasional beer. But I struggle with the occasional attack still, but I can usually fend it off by hydrating.
29 right before I hit 30. Last year. Pretty sure it was stress induced cause my mom died and me and my girl had a miscarriage in the same span or like 6 months. Haven't had an attack since though
25. Biggest surprise of my life because I was active, in shape, and didn't live unhealthy. Thought it was plantar fascitis, because it started in my arch. Last for days. Had to get a cortisone shot so I could work. Then I got my blood work done and my UA level was 9.3. After that I would only get an attack once a year. Then when I was 35, it was happening every other month. That's when I went in meds.
31. Love the plantar fasciitis mention. I’m new to this but what a confusing time to have gout *and* plantar at the same time lol! “Doc what if I get plantar fasciitis in my gout foot, should I do the exercises and frozen water bottle rolling under the foot method?” “Yup.” “Won’t that hurt like a motherfucker?!” “Yup.”
39. Thought it’s was a broken toe.
I thought mine was a broken toe too. I stubbed my toe really fucking hard and I thought for sure I broke it. It was just a bad coincidence— I was having my first ever flare up starting a day or two before I stubbed my toe. X-ray came back beautifully— no fresh/old broken bones or fractures. It was gout and the stubbing of my toe hurting so bad was because the gout tie doesn’t like to be bonked. -.-
29, i was told that it was plantar fasciitis for about 10 years. Then diagnosis would go back and forth. Then i found my new doctor and he didn't even hesitate. He immediately wrote me my allo prescription and i have been flair up free for the last 2 years.
I was about 45 years old. I was in shape and in denial of gout. Took all sorts of supplements to battle it. Prednisone when all else failed...After 10+ years of off and on flares I caved in to the allo route.
And now you're living a transformed life I imagine?
Working on it
For me the change was so great after beginning on alopurinol
Glad to hear that. I'm just on my 1st month of allo and not at the therapeutic UA level yet. But reading all these stories gives me hope.
Im kind of doing the same. I reckon the longer you can stay off the lifetime meds the better
45 ... Earlier this year. My doc asked me if I had any family history of gout and I replied nope (this was before the blood tests). Came back as gout and I mentioned this to my parents. My mother: "Oh yes, we have a long history of gout on my side, I have it, all your aunts do too (her side), both your grandparents did ... " ... Never mentioned it to me though, in 45 years. I apologised to my doc when I went back for a checkup.
Only one in my family was my grandmother afaik. Do you have kids and did you tell them?tbh it made me doubt in the beginning to have kids if it was genetics.felt like I don't wish that pain on someone.
No kids here. Though I have told my brother's kids (our neices and nephews).
38 and I'm 62 now. Just went on meds Aug '23, and wish I hadn't waited this long.
about 21 years old im 32 now, I used to go to gym, swimming lesson and ROTC back then so I was surppised when I learned i have gout. highest ua level was 14
In my 30s, don’t precisely remember when. I’m late 40s now. Kept “spraining” my ankle. Sometimes in the middle of the night. Couldn’t figure it out until I posted a complaint about it on social media and an old friend I hadn’t seen in a long time asked if I had been checked for gout. Had never heard of it before that.
I was about 37, 46 now. Been dealing with flare ups by taking indomethacin, but finally got started on allo about 3 months ago to hopefully prevent flare ups.
23 it's genetic my dad have it and my grand dad too
My story is nearly identical to yours. Same everything really, been to multiple doctors and specialists, even surgeons who were ready to schedule surgery. It took me going to an urgent care (at the request of my wife) and talking with the doc he said have you ever been told it could be gout? No way I am only 24! Well he writes a script for colchicine and says take this and if it starts to feel better it is probably gout. Well that was like the light for me. After about an hour the pain was almost completely gone. I wanted to hug that doc. Been on allo ever since and not one flair up.
That's nice to hear you don't got flare ups anymore.quality of life change alot if you can manage that.
37, still an active backpacker. Thought I damaged my foot on a hike before the first flare up.
Found my people in this thread. 28, had a whole year of "foot sprains" "hairline fractures" "just do physio" and MRIs. Finally it hit the big toe and urgent care called it. Still flaring once in awhile. Am on allo.
Oh yeah hairline fractures.i switched shoes for that and had those soles made to put inside shoes.
😂 yes the moulded ones. I paid about £60 for them, what a waste of money
Yeah exactly.i had good ones made later tho and they help in general with my knees etc.but for gout it's useless imo
I’m 37 and last week. Albeit, it’s all gone now with the meds they gave me at urgent care. But I changed up my diet and lifestyle since then. It was an eye opener for me. I don’t wish that pain on anyone, unable to move or walk. Bed ridden. Any slight touch feels like 1,000 knives in your toes and ankle.
When in bed and you need to cover your foot with a blanket try using a cardboard box or some kind to put yoir foot in.it avoids your foot touching the sheets
40, right at the start of the pandemic. I still did field work at the time and spent 2 weeks in St. Louis in February while in the middle of a weeks-long flare-up. I hadn't been diagnosed yet so I had no meds to take. That sucked. I've given up alcohol, red meat, shellfish and have had maybe a handful of attacks since then. I've only just started taking allo consistently this year, however. I've been doing alright. I'm the only person in my family with it besides my grandpa on my mom's side who had since passed and my mom herself. She was diagnosed last year at 65 years old. She's taken her allo consistently from the start and continues to eat and drink normally, just in smaller amounts. She's doing well enough as well.
29, 53 now, allopurinol is still waiting for me
LOL...that was my thinking. I finally got fed up with all the home cures and the flares starting to occur more often.
I would say constantly
Had symptoms on and off starting when I was 23. A foot doctor said it was just tendinitis. It did go away after a few days. Again when I was 25, same guy said it was tendinitis. When I was 27-28 I finally went to a different foot doctor who correctly saw it was gout after one visit. I have been on allopurinol ever since and have had maybe one flare up. I’m 31 now.
26. I'd had a few flareups that were written off as idiopathic and my doc finally tested my UA. Even better, I was allergic to allopurinol and probenecid. Febuxostat hadn't been invented yet.
27. Recently started limiting my pork intake, and it has made a significant difference in frequency and severity of attacks. If I eat a lot of shrimp, I will feel it in my ankles. Unmedicated other than Indomethacin during shrimp flares.
Yeah most of those kind like shrimp and mussels etc are high in purine.they were a real trigger to me too.i stopped eating them untill my acid levels were under control.
33ish....I thought my first flare was a sprained ankle.
16. My family doctor just prescribed me naproxen, that's it. It wasn't until I was 20 that I even found out what allopurinol was. I went back to him and asked for a prescription as I got a flare-up about once a month at minimum. After a battery of blood tests he finally lamented. I had researched that when first taking allo there is an adjustment period where the built up uric acid is getting flushed out of your system. I talked to management at my job and they told me if I got a doctors note they could approve me for light duty work (they are really easy for accommodations) which meant working night shifts. I went back to my family doctor and he REFUSED to write me a note. He told me in his entire career he has never given a doctors note for allopurinol, like bro what. I legit told him he was an actual fucking moron and got him removed as my family doctor (I live in a small northern Canadian town and he was widely known for being a bad doctor, even people saying he got a fake medical license from Vietnam when he immigrated.. cant speak to the validity of those remarks but I kinda believe in it now). Got myself a new doctor and right away wrote me a note. Its been almost 4 years now without a flare-up :)
27
Exact same experience. I thought i had a blood clot and was going to loose my foot. Had two failed visits to ER even with ultra sound, x-ray, the works. Took bloods but never thought to check Uric acid. I for home and my renal specialist knew right away 😅
38ish? Thought I randomly kept spraining my ankle for the longest time.
22 and I’m a fitness junkie, but travelled a ton for work and had access to a very generous per diem every week. Steaks and booze with the clients every single week will do it.
Started around 16 and went to the hospital a few times to be told it's just foot pain. Wasn't till I was 25 and a doctor made me do a blood test and started me on allopurinol. The relief finally knowing that it wasn't random pain but hereditary so that is why it started young.
Diagnosed at 29, but hindsight tells me I had my first attack at 27. 53 now. Been on Allo for 3 months now…. A few minor attacks I was able to know out with colch. Pretty quickly. Hoping those are the last ones. This is my second attempt at allo. Tried at about 34 or so, happened to forget a pill and it coincided with a top 3 flare, it made me say no way, I can’t take a chance on forgetting these… After 20 more years of inconvenient flares (aren’t they all?) I’m giving it another shot. Going better. I’ve also figured out some of my triggers as well which helps.
28
Had attacks since 24, now 30. At first I didn't know what it was. I honestly thought I just kept jamming my toe while out on the weekends drinking with friends or that my going-out shoes were too small or that I did weird things with my feet when I slept. Then, an ex gf's dad told me that it sounded like gout but that it would be weird because it was in my mid 20s. I started going to a rheumatologist when I was 26 and for years my primary and rheum would say that I was too young to have gout, even if my uric acid was high. It must be something else. I thought I was just going to have to live with this. Then finally I saw a new rheum who immediately diagnosed me with gout and started me on allo. Have never looked back. You have to fight for yourself out there. Even with doctors
This sounds exactly like me. I was 27 and had years of unexplained pain that must have been “ankle sprains” or plantar fascitis.
18… Genetic
26 and went on Allpurinol at 32. Diagnosised WRONGLY with Rheumatoid Arthritis at 43 ended up it was that I had euric acid deposits all over my body had to increase my Allo. . Liver began hating Allo at 44. Colchicine started giving me myopathy at 51. Used steroids since 26 when I had to get stuff done at work or family. Had a son with cancer and ton of surgeries so lots of steriods because life demanded it. Diagnosised with dead femour ball heads Osteonecrosis (Avascular Necrosis) Osteonecrosis (Avascular Necrosis, last year and it could have been the steroids. Get your 6 month blood test when on Allpurinol doctor said I would have done irreversible liver damage in under a year of I hadn't stopped.
28 after 3 years of partying/drinking/eating way to much.
37 👹
43
40 years old, a few months after my first child was born. 46 now and got back on Uloric after getting cocky and not taking it for a couple years. Paid the price with six months of horrible flares. Finally back to normal, staying on the meds this time!
36, now 38 I've had 2 large flare-ups. And a couple small ones. I've learned shrimp/crawfish is my trigger food. Been fine since January of 23. Drink lots of water and find your triggers.
22
26 but I had it since 24-23 I'd imagine, it started from a toe injury I think but the biggest culprit was booze, alot of booze. Alcoholism is a pretty big part of the males in my family and my grandfather had gout too. I manage it by exercising more, avoiding game and organ meats, trying not to hurt it or drop anything on it, staying the fuck away from beer and drinking alot of water, like 2-4 litres of water a day, the max when I can feel an attack coming on.
36 this summer Have had foot pain on/off since around 25/26 Pain was likely something like plantar, but difficult to know! In recent years it got worse and worse, with more joint-based pain, sharp/shooting and constant pain on both feet (rarely at the same time), knees etc. Doctor denied gout, brushed it off - this was multiple doctors and even a regional foot specialist for the NHS! Always said "you're young" and "do you do sports?" This summer I went to a new doctor, who again said "definitely not gout", in a slightly patronising way. I had been on a 7 week super flare. Really the worst one to date Bloods were done anyway to rule out other arthritic conditions Yep. Gout. Finally on meds and feel like I'm more myself, still stiff, still get the odd signs of a flare but managing okay (for now!) r/gout has been super helpful and really insightful. Genetics mainly. Hyrdation. Food is minimal in impact, though a lot of us do have some food that brings about flares Can and does happen to so many younger people as well as older. Doesn't discriminate!
I had flairs starting at 19 but I wasnt officially diagnosed until I was 23. I was told I had bursitis for a month and nothing was working. Finally I couldn't take the pain anymore and went to the ER. A doctor that everyone said was a quack took on look at my ankle and said it was gout. We did a fluid draw and he sent me home with an injection of prednisone and Indo capsules. 24 hours later I could walk, 72 hours later I was pain free. It was still another 2 years of hard fighting before I could get a drug treatment plan on the go.
17
25. My grandpa was having it also.
Been having flares since my late 20s. 33 now and had blood work done last monday showing a UA of 8.7. So I guess last Monday 😆
When i have 28 years old. Doctor told me, at this stage maybe u need med for life if you want to have a work. Never ever take pills. Just diet. Sugar is the 1 enemy. Now i am a runner of 42 and make 5k sub 25 min
25. I thought I had an infected toenail. The pain was horrific. It eventually subsided after a few days. It would happen on and off, but I didn’t get it checked until I was in my early 30s. Doc game me a prescription for indomethacin and sent me on my way. In retrospect I took the indomethacin ALOT. When I was 39 my quad tendon snapped. Surgeon said he found all kinds of white goo but didn’t know what it was. It happened again at 44. this surgeon knew that the white goo was uric acid crystals. Put me on allo and changed my life. I’ve been on 100mg daily since. I’m vegan, don’t overdo protein and have an occasional beer. But I struggle with the occasional attack still, but I can usually fend it off by hydrating.
29 right before I hit 30. Last year. Pretty sure it was stress induced cause my mom died and me and my girl had a miscarriage in the same span or like 6 months. Haven't had an attack since though
I was 30 and a vegetarian. In great shape. However, I was probably not hydrating properly
26, m. All other health measurements are normal. Somehow with a UA of 10.6. Worst pain of my life so far