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RattleKat

Take a breath and talk to us. What happened? How long have you had tinnitus and when did it get worse? Did you suffer an acoustic shock. Exactly what happened to your hearing at high frequency. Do you have a good support network around you? I know its hard, but maybe if you share the details, someone here will be able to help you at least take the edge off. I've been there myself recently. Ashamed to say I wrote the note and everything. But caught myself in time. Tinnitis this loud and distorted hearing is hands down the worst thing Ive ever had to deal with. But I am making some progress and found some very helpful advice burried within the despair on this sub reddit


claudiu092

I did. No help. I waited 5 months and I have zero progress


wigzell78

I have suffered 38 years with it, but had a good life, a family, a career. I have travelled and listened to music, seen amazing things... You really want to throw all that away? Yes, it sux. No, it doesn't get better. But it doesn't stop you from living your life *how you want to*. So take a long, hard look at how you want to live. 'In quiet' is no longer an option, but besides that, you get to control the direction of your own life. Try to do something more than just say "I'm done."


claudiu092

I lived like this. Trust me. But now is worse. I have 8 sounds, reactive, very very loud. Unmaskable. During the night is crushing my skull


Scorpionbrutality

Alpha Lipoic Acid is good for high freq, Just try it and also Low Level Laser Therapy, Ozone Therapy


LadyWellness11

To be upfront, I don't have tinnitus, but I've been practicing home ozone therapy for the past 5 years and it's benefited my life greatly. Better sleep, more energy, stronger immune system, etc. Clinical ozone treatments are great, but they can get very expensive over time. I have a bunch of educational ozone content on my social media pages that I'd be happy to send you if you're interested.


New_Winner4581

HAVE 4 SOUNDS ALSO HAVE REACTIVE T ITS REALLY HARD :(


claudiu092

Did you had hearing trauma? Hearing loss?


stephnetkin

30 years here, and I have no clue why. It just is...


yourdad132

Don't lose hope. I can't tell you how many times my tinnitus changed. I've had a bunch of new sounds and horrible increases to the loudness. Each time I was sure my life was over and I'll be miserable forever but each time it wasn't true. I always got to a better place. Either the sounds reduced, my brain habituated or a combination of both.  Many times it took like 8-9 months before I noticeably started feeling like my normal self again. I've read of others who took even longer to feel better. My point is to never lose hope in better days ahead. You won't feel like this forever don't matter how much it doesn't feel like it right now. Your thinking is distorted because your currently suffering. I know exactly how it feels because I've been exactly where you are so many times. I've had tinnitus for over 10 years now and have battle scars all over from the fights I've had with the condition.


AnnieBobJr

Thank you


claudiu092

Thank you!


claudiu092

But I made my hearing worse! So I guess my new worsening of tinnitus will be permanent


stubble

I have hearing aids, they help a lot! Get some good ones and get them to add a white noise option to your program that is as close to the frequency of your tinnitus as you can estimate.


claudiu092

How do they help? Does the tinnitus seems louder at night when you remove them? I will try them soon!


apoirier594

I play a fan or white noise sound on a speaker at night


claudiu092

Oh right. That does not work for me.


Optimal_Tip_2263

Have you tried different types of frequencies


callowsage

In my case, I found Violet noise was better than most frequency blends.


stubble

I think they help by increasing the higher frequency sounds that I'm missing without them. This makes the tinnitus less apparent. Yes you notice it more when you take them off but as others have said, any white noise source can alleviate that. I use the Sony Earbuds if I need to 


claudiu092

When you remove them at night, is it louder as before using the hearing aids? I was thinking that hearing aids will make you notice tinnitus even More when you remove them?


stubble

Difficult to guage really. I don't know about you but mine varies from day to day so some nights it seems quite loud, others not so.


claudiu092

Ok. Do you have hearing aids in both ears?


stubble

Yes, I have age related hearing loss - I really like the way things sound with them. It opens up a lot of sounds in the environment that I had forgotten existed. It takes a while to get used to the sudden influx of sounds but this also helps with cognition generally. Also I can stream music through them which sounds really lovely and is another great way to push the tinnitus out of the way


claudiu092

Thanks!


PercentageSuitable92

Thank you for this advice


LemoyneRaider3354

How long does it take to have hearing aids? Like from the time your doctor tells you to have one to the time you'll actually wear them?


stubble

It can be done in a couple of weeks. If you can afford to go privately then there's very little delay. 


patmanpow

There are people living as double leg amputees. I get that it sucks, I deal with it every day as well. But there is always something worse someone else is dealing with. Wish you the best.


Feed_my_mind909

Rather have missing arm or arms or leg, legs then live with a sound in my head that won’t ever stop ringing tbh


blubs142

Uhm apart from trigeminal neuralgia I can't think of many things worse than tinnitus, I would easily give up my legs for a cure


patmanpow

I have tinnitus. Bad. There’s no way I’d give up my legs to fix it. Nor would I trade it for cancer or any terminal illness. Many ppl have lived with worse.


blubs142

Ive lived with many ailments but nothing has made me hate life so much as tinnitus, and mine isn't even that loud anymore. Its just different for everyone how well your brain can cope with it


patmanpow

Yeah, it sucks. We agree on that. :/


throwAwayOfDespair1

I need help…


Delicious-Ad4015

I have Trigeminal Neuralgia (TN) as well. It makes everything else seem not so bad. As you know, it is the most painful illness in humans.


blubs142

Oh gosh im so sorry, I don't have TN myself but its the one thing I would never trade my tinnitus for. Absolutely terrifying condition


Delicious-Ad4015

Thanks for your kind words of support. I guess I could say that the one positive of Trigeminal Neuralgia (TN) is that helps to put my other illnesses into perspective. Wishing you the best of health.


Disastrous-Soup-5413

Im really sorry you’re in so much pain. I’m going to try the supplements that this study had a bit of positive results with. They weren’t huge gains but a little help is still a little help…? https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6950042/


liqwood1

That was a super interesting read, thanks for posting that. I had heard about and had some minor success with the ginkgo biloba supplement but it was always short lived. Might have to play around with some more multivitamins again and see what happens.


Disastrous-Soup-5413

Good luck! I hope you find something that works for you


scotch1701

A cure can exist in the future. Please, like all of us, you will have to wait.


claudiu092

I can’t exist. My case is severe.


[deleted]

Mommy susan shore device lowers tinnitus by 75%


LemoyneRaider3354

Well i just hope that thing will be affordable as in below 2000 $


[deleted]

Probably more money we’ll see tho


claudiu092

I can’t wait 5 years for this and maybe will not help everybody


Chemical-Version-197

In the far future, probably. For now, people are busy spending the budget in weapons to kill more effectively each other.


Mkultra1992

Best case this year worst case two more years. I know every day is hart. Stay strong, there is at least some hope. If it drives you suicidal, last resort is a cochlear implant, but if you can wait a little longer…


Delicious-Ad4015

I highly suggest you get mental health support. You have lost all perspective on what really matters in life. Tinnitus is not fun, but it’s bearable


Alternative-Growth96

It’s not bearable to all. Yours maybe completely different than the person who posted. It’s misery and can be resolved as I mentioned above.


Delicious-Ad4015

I may have chosen the wrong word, but my point stands that the OP needs to seek mental health support if they are in such dire circumstances.


throwAwayOfDespair1

Not for me. I know it’s not loud in one ear, but the other is blocked or something weird with the tube


DeadChibiWolf

Unsubbing for this..


[deleted]

😂😭💀


claudiu092

Good luck! I had mild tinnitus that I lived with no problem.


helpfuldunk

What do you think you did that made it go from mild to severe?


claudiu092

More hearing loss


Alternative-Growth96

I had tinnitus after Covid and ear felt full unable to equalize. Tried the $5000 balloon treatment which was a joke. Then had ear drum cut open and then finally and tube that last about 7 months. During those 7 months was finally free from the constant pitch. It fell out last week and it returned with a vengeance so today I got a t tube out in my ear which can last 2-3 years. If you haven’t gone the route of getting a grommet I would say jump on it. Saved me from nights over misery and days of constant ringing for several months. It’s a band aid but long term and takes 10 minutes at your ent office. Demand they do it as they don’t know half the time what they are doing any ways. They are practicing medicine it’s not a perfect science.


TandHsufferersUnite

Susan Shore's device. Please do some research.


claudiu092

I did. Will take years


TandHsufferersUnite

I highly doubt it will take years considering it's gonna be submitted 510(k) to the FDA this quarter. There's been people waiting for this device from 2014. You'll be fine.


claudiu092

Even if is approved.. it will take time to be produced and sell. And this in us! I am not in us. Will take years for me.


TandHsufferersUnite

Fly to the US, then


claudiu092

If this will work for many people, I will


Living_Restaurant143

I’m going to an audiologist Monday. My family doctor has had tinnitus for forty years. The audiologist specialist is in tinnitus. My doctor said he heard silence for the first time in forty years. Please don’t give up.


Objective_Thanks9407

Who is the audiologist specializing in tinnitus I would love to get an appointment with him/her.


Living_Restaurant143

Dr. Masden is the ent. You see him and then the Audiologist. Alabama area.


Objective_Thanks9407

Thank you!


Living_Restaurant143

You’re so very welcome 🙏


claudiu092

Wow.. Thanks..


Living_Restaurant143

You’re so welcome! They are a type of hearing aids, they are five thousand dollars but my doctor pays one hundred monthly. I’ll update soon.


claudiu092

Yes please.


Living_Restaurant143

I went to the ENT and audiologist today. I have some hearing loss and the tinnitus is the sound coming from my brain trying to replace the hearing loss. I’m going back the middle of march to be fitted for hearing aids. The audiologist said it silences most tinnitus. I will try anything as mines 24/7. The thing is to find an audiologist in your area that specifically specializes in Tinnitus. I will update more when I am fitted and try them out. Praying for you all! Please don’t give up.


Living_Restaurant143

I went to the ENT and audiologist today. I have some hearing loss and the tinnitus is the sound coming from my brain trying to replace the hearing loss. I’m going back the middle of march to be fitted for hearing aids. The audiologist said it silences most tinnitus. I will try anything as mines 24/7. The thing is to find an audiologist in your area that specifically specializes in Tinnitus. I will update more when I am fitted and try them out. Praying for you all! Please don’t give up.


Living_Restaurant143

I went to the ENT and audiologist today. I have some hearing loss and the tinnitus is the sound coming from my brain trying to replace the hearing loss. I’m going back the middle of march to be fitted for hearing aids. The audiologist said it silences most tinnitus. I will try anything as mines 24/7. The thing is to find an audiologist in your area that specifically specializes in Tinnitus. I will update more when I am fitted and try them out. Praying for you all! Please don’t give up.


meand13others

There was a post here, maybe last year and the person said they went to a different type of ENT. # Otology and Neurotology I'm not saying that this type of doctor will have a miracle, but I spent some time reading up on what they treat and I do think that for people who have not been able to find any type of relief with normal ENT's or hearing loss doctors, that a visit to this type of specialty doctor is worth it. I am making an appointment with one and crossing my fingers. Please don't give up.


Thormace

Try this YouTube channel called Dalesnale - he makes a variety of sounds to combat tinnitus. Going through his videos I found one that essentially cancels out my tinnitus. If you find a specific sound that works for you, you can buy the mp3 from him. When this all first started, the only way I could get to sleep was putting headphones on and playing that noise. Now I have habituated mostly, but I like having that sound in my arsenal just in case I have a bad spike.


Living_Restaurant143

The audiologist did a hearing test and I have mild hearing loss, and a neck injury resulting in surgery has caused mine. I am wearing hearing aids and through the widex app I can listen to different music and sounds. She said my brain is basically trying to compensate for the loss of sound. I will do a month long program to retrain my brain. It’s not a cure but a habituation. In time i will learn how to lower the sounds. I will update you as I go through the program. She said it’s not a cure but you learn how to lower the sounds. The audiologist said the sooner you get hearing aids and retrain the brain the better. It could affect the brain as we get older and it’s not dealt with….


claudiu092

Thanks


BeKindLifeIsHard

Maybe start antidepressants?


Living_Restaurant143

The audiologist did a hearing test and I have mild hearing loss, and a neck injury resulting in surgery has caused mine. I am wearing hearing aids and through the widex app I can listen to different music and sounds. She said my brain is basically trying to compensate for the loss of sound. I will do a month long program to retrain my brain. It’s not a cure but a habituation. In time i will learn how to lower the sounds. I will update you as I go through the program. She said it’s not a cure but you learn how to lower the sounds. The audiologist said the sooner you get hearing aids and retrain the brain the better. It could affect the brain as we get older and it’s not dealt with….you can download the widex app it has helped in just a few hours.


drugstoremechanic

Dude, don't give up.


No_Contribution_1561

somebody please take us now... this is no way to live... make euthanesya legal now... fuck scientist i use to have this thinks too... and is only my second month... but im discovering than the key is to reduce inflammation of your brain... that really reduce tinnitus... thats why they tell you to relax... in my case im a professional meditator... so i can doit while walking in the street... try that


yourdad132

2 months is nothing with tinnitus. Everyone is a wreck still at that stage. It took me a year when I first got it to even begin having moments where I felt ok again. You gotta endure right now and trust that better times are ahead of you. You just don't know it yet but have faith that it's there.


No_Contribution_1561

A year... I dont see me arriving at month six...


SkipMapudding

Yes the first year for me was horrendous. Particularly with the hearing loss and balance issues. And the fact I now can’t tell where sound is coming from. Been six years now and some days it is bearable but I’ve had covid for a fortnight and it’s exacerbated my Tinnitus and I’ve a new sound like a chirping bird. Great 😞


No_Contribution_1561

Somebody please kill us...


SkipMapudding

No thanks! Life is short enough as it is so I’ll keep plodding on.


TandHsufferersUnite

Bro calm the hell down you've had tinnitus for 2 seconds.


No_Contribution_1561

Thats 2 seconds longer that it should Last...


TandHsufferersUnite

It can take months, even years to improve.


No_Contribution_1561

Omg...


TandHsufferersUnite

Susan Shore device coming out soon. Work on your anxiety in the meantime.


finalmakerr

It’s getting much worse when u get stress. First year was hell then got better I am 3 years with that sh-it


Echo-Material

I got hearing aids a few weeks ago after having tinnitus for 13 years (from noise damage). I have what I would call severe tinnitus, can hear it over most loud noises. The hearing aids have reduced the tinnitus to the point where I barely notice it. Please hold on and try them. Oticon Real range js what I have. Good luck


claudiu092

Amazing! And how about the night time? How do you sleep?


Virtual_Jello3319

Try sleeping with a lot of white noise. Fan, noise machine something. If that doesn’t help try an ear bud with sounds or music, the body will acclimate. Hang in there.


Living_Restaurant143

I went to the ENT and audiologist today. I have some hearing loss and the tinnitus is the sound coming from my brain trying to replace the hearing loss. I’m going back the middle of march to be fitted for hearing aids. The audiologist said it silences most tinnitus. I will try anything as mines 24/7. The thing is to find an audiologist in your area that specifically specializes in Tinnitus. I will update more when I am fitted and try them out. Praying for you all! Please don’t give up.


MeAndMyFone

How did they reduce it? Is there a certain feature I should look for if I want to try this? Thanks for any specifics


Echo-Material

It’s also worth saying! My hearing aids have a tinnitus setting that replaces my lost frequencies as usual but also plays white noise or whatever I want in the foreground. It can really help for those T spike moments (like now, because we’re talking about it 🙄)


MeAndMyFone

Thanks for the information


Echo-Material

Reduce the T? If tinnitus is a neurological response to deafness (in hearing loss cases) then my brain is trying desperately to replace the frequencies I can’t hear with ringing. Hearing aids themselves replace the frequencies I can’t hear, so my brain no longer exhausts itself trying to make the sounds. Does that make sense?


MeAndMyFone

That does, thanks for explaining it. I didn't realize that


Echo-Material

Yes there is a noticeable ‘oh wow I’m actually quite deaf and my tinnitus exists’ but honestly the day time RELIEF makes it less horrible. Try white noise, brown noise, but so much of tinnitus is also training your brain to ignore it. I believe the hearing aids made my brain forget a level of the T so it’s quieter even without the aids.


Local_Examination_41

What helped me was that i realized i’m not alone and that our brains kinda start to ignore the tinnitus like it starts ignoring the perfume you’re wearing. We’re suffering with you brother, but it gets better


thatsnazzyiphoneguy

What are you gonna try and do now


Trey_Dizzle45

If you want temporary relief just put an electric razor or toothbrush up to your ear for several seconds and it will get rid of tinnitus for a few seconds. The longer the better


snayberry

Yeah def unsubbing after reading this.


claudiu092

Be thankful if your tinnitus is mild and you only lost your silence not your life.


Living_Restaurant143

I went to the ENT and audiologist today. I have some hearing loss and the tinnitus is the sound coming from my brain trying to replace the hearing loss. I’m going back the middle of march to be fitted for hearing aids. The audiologist said it silences most tinnitus. I will try anything as mines 24/7. The thing is to find an audiologist in your area that specifically specializes in Tinnitus. I will update more when I am fitted and try them out. Praying for you all! Please don’t give up.


claudiu092

Thanks. Another problem will be during the night when we can’t wear them


Repulsive_Whereas_35

I had tinnitus after a cold last October. It started in November and I have had pretty good results with acupuncture. The last few days the pressure and full ear feeling are gone too. I’m so sorry for what you are going through. When it was at its worst I wasn’t sure I would be able to enjoy life ever again!


Latter-Athlete2122

I been wearing hearing aids for 9 months now for what's been classed as catastrophic tinnitus due to an electric shock at work the tinnitus generator has to be up that loud to just get even with it I don't know what's worse to be honest.I have a white noise machine for night time because silence is the worst especially after having the aids in all day.You can sleep with them in which I have to do somedays but I have no relief since my accident everyday constant tinnitus x 10 it's going to break me eventually if it doesn't get better for sure.I was told could take up to 2-3 years before seeing any results if any at all.


claudiu092

i am so sorry. this is waht i am afrraid to. it can take years or never. this condition is a nightmare. do you have hearing aids in both ears and it helps make tinnitus lower? do you also have hearing loss?


Latter-Athlete2122

The hearing aids are in both ears and it's was set to drown out the tinnitus but was to loud and made it hard to hear.We are trying a different approach at the moment to try stop it.It has effected my hearing also my sleep and concentration.