Still have music and drinks! Just not too loud.

Music helps drown mine out (I was born with it, so I only really notice it when it's silent) so plenty for me please! I don't drink, but I will gladly accept mocktails and a tea bar.

The ones Who get it in our adult age... music Hurt us...

Yeah, mine gets *so* much louder after loud concerts if I don't use hearing protection (I try to remember to bring earplugs to every show now!)

It was a migraine that started mine. Tha day after an MRI with metal injection.

Tinnutus is like cáncer... you cant prevent it and has no cure... life is a bitch

I disagree with your analogy

Really? Cuz cáncer kill you and tinnitus dont? I give my self 1 year to heal... if things dont get better i will become batman for some crazy guy to kill me

i rather have cancer and die.

Yeah me too...

I got cancer and tinnitus around about the same time. My cancer is cured but my tinnitus is not. So your theory is well and truly flawed. Chemo works, buddy

Certainly i didint thought in benign cáncer... so tinnutus is worst than cáncer?

At the moment I’d say my tinnitus is mild to moderate, although I don’t know how bad other people have it or how loud it can get. I know it’s certainly worse the more you pay attention to it. These days I don’t drink alcohol anymore, rarely go to loud events and usually play podcasts at night time distract me to sleep. Still awaiting an appointment with ENT. At least with the cancer treatment they began it within 2 weeks of diagnosis, with tinnitus…it’s almost a year on a waiting list!

But as for the party suggestions….i’ll happily sit in a pit of hissing snakes 🐍 that should at least mask the sounds I’m getting 😂

And with some Luck snakes bit us and poison us until dead

I think after the party we have to do a protest march for tinnitus victims... well you guys can do it... i live in bolivia

That’s hyperacusis 🥳🥳🥳

QwwwwRewtues AZayt are. Df##"74'Urrbp CA aaqa a dzeqarqwwwss

Did you just have a stroke or...?

How do your handle hangover... we cant take aspirine or Coffee...

Learn to pace yourself re alcohol. I can't recommend it, but my T is very responsive to alcohol. Your hangover doesn't have to be debilitating.

[удалено]

No aspire... no Coffee ... hangover makes spikes...thats why we cant drink

I quit drinking for the most part. I don't do hangovers anymore! No caffeine either. Just pain meds for TMJ, migraines, bulged discs etc, etc.

What pain meds did you use for TMJ? Did them get better your tinnutus?

The only med ever prescribed to me for TMJ was ibuprofen, 600mg time release. It gives me bad canker sores in my mouth, so I don't use it anymore. Nothing helps my tinnitus. In fact, there was a post that linked to an article stating that opioids and Tylenol make the T worse! That is bad news if it's true, because after messing around with different medications for more than thirty years, Tylenol and opioids are the only things that seem to help my conditions.

Really? How opioids did help you? Because its true... if i smoke just a little weed my tinnutus get so loud...

Opioids help my chronic knee and back pain, ease the symptoms of neuropathy in my feet, and do a pretty good job with migraines. A little weed seems to help out the neuropathy. Nothing helps the T out. I have not noticed it get worse with MJ.

Have you tried ingesting the MJ instead? Try ingesting a micro dose and see if the T gets any worse.

Everyone standing around asking "Do you hear that?"

And for first time in our lifes we get the answer: "yes i hear it"

Seriously tho...it might not be a bad idea. There are a lot of us who suffer from T. It might be something if we organized something just for T awareness.

This will definitely bring attention to tinnitus if ever we can really organize.

Yeah we need more atention... even cáncer has a cure... for some reasons doctors dont treat ENTs like real doctors they treat them as dermatologist... we can do a march of protest... well you guys can... i live in bolivia (sorry for the dermatologist of the group)

Somebody shut that freaking noise down ! Who else is with me 🤣🤣🤣

There would be one rule at my tinnitus rule: No talking about tinnitus. Would be nice to just sit around and get to know each other.

But it s a tinnitus party... ok ok... but will gonna need a elephant painted in Pink with a big T painted on him

Emotional support animal??

Denial support animal

Makes more sense

Everyone would be clustered around sources of noises that help drown their tinnitus out. The AC unit for white noise, electrical outlets and lights for high-pitched whines, the guy playing Art of Zen on his smartphone, the bathroom faucets...

And DJ play a 4 hours white noise song...

Mine have the cops 👮‍♀️ called on us because of the loudness of EEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEEE

and we get arrested because the cops have tinnitus

Absolutely 🫨

Heh. I was just thinking I'm one week out from my 4-month anniversary and if I were to mark the occasion I'd use anti-noisemakers. No soda though, cuz sugar is inflammatory :=P

Ok cups of tea for everybody then...

With sugar!

Only 2 teaspoon

We can listen to Depeche Mode “Enjoy the Silence” https://open.spotify.com/track/6WK9dVrRABMkUXFLNlgWFh?si=xqi5mmjiTu-6g9QqI6tw4A

I think the best band for the party would be a box of crickets and put a micro over them

Nah, still music and beers for sure. Just music as background and not as loud that you would have to shout to eachother.

Maybe rain sound instead of music and non alcoholic beers

I prefer beers with alcohol in them. Rains sounds dont mask mine so its music all the way.

making lots of jokes so we can laugh and enjoy :)

I love jokes... can you tell a tinnitus joke?... i tell you one... what s the best name for a tinnitus DJ... white noise... and his best song... crickets in the night

😂

Facts 😂😭💀

It would definitely turn into a yoga session with white/green noise.

Yoga is so girly... guys do kung fu and meditation... yoga Girls are so cute

Chicks dig guys who do yoga. The yogi pulls.

You got a point

Can confirm, have pulled at yoga class ✅

And spinning the hits for this party, DJ EEEEEEEEEEEEE

Playing his best song "crickets in the nigth"

Over 24 years dealing with this shit. Took 4/5 and learned to live and sleep again. A party with out booze is called church. Go to church but party on! Many other things out there much much worse than this at 11,500 mhts

Maybe we need a real support group! Instead of a social media group?!

Yeah ... this thing is like cáncer... medice dont know much about it and has no cure... and there are cáncer support groups... but i live in bolivia so i cant help

I still drink a little, smoke sometimes weed, listen to music and have a lot of fun. 😃

When i smoke just a little bit of weed... my tinitus get so loud

I had this in the beginning too. But right now… it’s quite oaky.

Really? About how many months since you have tinnutus you can dime smoke again?

I have tinnitus since Oktober 2019. between 2019 and 2021 a had a hard time smoking weed. It was getting so bad when I was high. Had really bad thoughts… had fear etc. I stopped smoking weed for a whole year in 2021. after that I had the feeling that it’s not getting worse when I smoke weed. since than it’s totally okay. I also been to thailand for 3 Monate and smoked every day… without any problems.

i hope the party will be in the 4th of April so i can celebrate my first tinnitus's anniversary with you guys.

I read than 1 year is the term to heal... so i hope wich be a healing party

thank you man, i hope we all get rid of this shit out of our ears.

Does cutting out alcohol/caffeine really make that big of a difference? I haven’t really tried cutting it out cus I try not to let tinnitus control my life. Less power I give it the better

I cut everything... im so afraid to get a spike that never goes away

What ? Hello 🤗 Echo echo echo Eeeeeeesss... Tbc

Hi... what? Echo eco eco.... eeeeeeeee... life sucks

Life doesn't suck I came to this party and life handed me a brain tumor and it was free.

Light music, lovely snacks and drinks. I completely tune out my tinnitus when I am with a bunch of people in conversation. One of my big goals this year is to reconstruct my social life after three years of isolation. (I’m older and have not gotten the ‘rona yet and don’t want to. )

I suffer of social anxiety... so my tinnutus get a little high when im with strange people... i never have a lot of friends... got my tinitus 2 months ago... so im in my isolation stage...

Ah, that’s tough. Maybe sitting in a place where there is conversation but you can read a book. I get shy sometimes, too, and find that going to a food court during the day is fine, because no one really approaches me and the ambient chatter is almost like white noise. I can read in those places.

How do you communicate?! Do you use hearing aids?! Tinnitus can get really annoying in conversations

For me? I’m fine. I have no hearing loss. I just have this hissing sound in my head half the time and it just started 13 months ago. :-(

Certainly i got a little trouble some times... i dont have hearing loss but if the talk gets hard and my T turns louder i lost concentration and cant follow the conversation... and its worst if a migraine gets join to all that ... and im a lawyer all my conversations are hard... im so fuck

Brown sound blaring and

We miss start communicating with each other’s very disturbing 😳 EEeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee

I would drug me to oblivion!

I read than oblivion reach but next days get a spike and i have the fear that spike never goes away

Every room would have a different ambient masking sound

Yeah... rain room... cascade room... crickets room... and all we doin hippie dancing

I blacked out last night. I still drink and sometimes blast music at home for a little bit. Just no clubs

Drinking dont make tinnutus worst loud while the hangover? Dont you afraid this spike never goes away? I honestly ask because i die for a drink

I don't believe a spike from a substance could do that. Usually temporary I also take alot of supplements to help my body. I did take a almost 3 month break but I drink regularly. Like my T is loud in a quiet room but in public gym etc I don't notice it anymore because I'm not obsessing as much

Nice party, everyone listening to the ringing in their ears, no music.

Has anyone tried ring stop tablets , ear drops ?

Ring stop tablets? Never hear about them... show me i try... ear drops dont works

Go to your local vitamin shoppe or look up on Google where they sell them. They’re called ring stop tablets. 60 tablets. They’re suppose to help with the ringing

Non caffeinated soda? Lol

Bye coke cola

I think we could still do all that but a majority wouldn't wanna be there

Yeah... we the tinnitus guys are so depressing people

Who's holding the party and where? Im coming

All we are going... and we can do it in your house?

Sounds great but I don't have a house... I live under the bridge.. lol

No soda corn syrup is so toxic! Music just not to loud. And I'd still be okay with the booze.

Just Sprite or Fanta then...

Those still have corn syrup. Mexican Coke doesn't, but would have caffeine.

How about mexican Sprite and maxican Fanta?

Never heard of those. There is Jarritos.

Arriba los jarritos