T O P

Dani has posted a GFM in order to go to Mayo Clinic

Bethany demonstrates the best thing about her wheelchair

Dani has a psych appt next week

Bethany talks about how she handles being sick

my.eds is alive (they/them only, warning SH scar on last slide)

OnDn is trying to hide the pain

Dani is headed to the ER

Bethany talks about the purpose of her rings

Kaya carrying her wheelchair down the stairs bc the elevators weren’t working

Dani shows her medical supply closet

Bethany shows her new wheelchair

Buy Me Independence

my.eds was unsure how much time they had left back in 2018. (They/them only)

Dani provides Cleveland Clinic update part 2 - the doctor she no longer likes because he told her that her pain was psychosomatic and she doesn't believe in that. She is already planning to disagree with the GI psych

Dani gets a medical supplies goodie bag, talks discharge and dexcom

Ash talking about her invisible illness, as if she doesn’t remind us daily.

CZ’s port needs to be removed and lots of decisions need to be made

Kay marched through her kitchen going “I’m taking my emergency pain meds i am NOT doing this tonight” due to her IVIG migraine

Does red light therapy : does it actually work ?

Ash's POTS is under control

Kay dropped an unsheathed syringe upside down on her thigh

kaya is in her happy place: the hospital

SDP reports that her heart rate did not go over 120bpm while riding a horse

Dani is going back to Cleveland Clinic and hopes they have ideas on how to help her get her health back (but she doesn't specify what she is hoping to improve). Although it does sound like she has an appointment with GI psychology which could be actually useful if she listens.

Kaya uses all possible accommodations for her flight

Hi Its Me!

R

fallen_snowflake1234

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